Why Planning Matters to People With IDD

A young woman with Down syndrome smiles brightly, wearing an orange tank top, standing next to a young man with Down syndrome in a white shirt. They are outdoors, surrounded by greenery, with a warm, sunny atmosphere.

A Strong Plan Builds a Stronger Future

Future planning helps people with intellectual and developmental disabilities (IDD) live the lives they want, now and in the future. It provides an opportunity for people to say what they want for their life. They can choose things like where to live, where they want to work, and how they want to spend their time. It also helps families understand how they can help the person with IDD as they move through different life stages.

With a good plan, we can make sure the person with IDD gets the help they need to find the right services, navigate important transitions, and reach their goals.

Planning Works Best When We Work Together

Everyone involved in a person’s life has a role to play in future planning, and the best plans happen when people work together as a team. This includes family members, service providers, doctors, friends, and most importantly, the person with IDD themselves.

When you have a planning team that communicates well, plans are stronger and more meaningful. It reduces confusion, saves time, and ensures that the person with IDD is truly at the center, making their own choices and working toward their goals.

The Keys to a Good Future Plan

A future plan is written by a person with IDD to help others understand what matters most to them.  Others who might help with this document include family members, close friends, support coordinators, health care providers, and anyone else who knows the person well. Here are some examples of what to include.

Ready for your next step?
Let’s Build a Future Plan

A written future plan—sometimes called a letter of intent—captures important personal details about a person with IDD, including their daily routines, preferences, and goals. It creates a roadmap for family and supporters to follow.

Keep Life Consistent

Make sure life feels familiar and comfortable, even when circumstances change.

Make Decisions Easier

Prevent confusion about health care, finances, lifestyle choices, and more.

Strengthen Your Overall Plan

Get a complete picture of the person’s life to support financial and legal planning.